So, we decided to create a page by patients for patients (and Lung Cancer Survivors). Now, I did have a woman get mad at me because she said her husband died but she was still a survivor. I happen to agree with her. Being a caregiver and watching a loved one pass away has to be the most gut wrenching thing in the world. The problem is, as a patient and someone fighting for my life, I couldn't hear it anymore.
I think it's amazing to have a group collectively for lung cancer patients and caregivers. Through facebook it is Lung Cancer Awareness and it's founded and run by LUNGevity. You've also got Lung Cancer and Caregivers Support Group and finally you've got Lung Cancer Survivors and Support Group, Additionally, LUNGevity has different groups dedicated to different mutations, etc. They have a ton of information. But of these groups, all have some caregivers in them. And that's okay. I'm not knocking that at all.
We wanted to make something to where you could only get in if you're a patient or survivor. A place to vent, to talk about the things you're afraid to talk to non-patients or family about. Your fears and advice for the future. Right now we are a super small group, which is great because we are like family in there. Anyone with lung cancer or who survived it is welcome to join. It's Lung Cancer Awareness *Fresh Air* *No Drama* . This is a safe zone. You are able to really open up about your diagnosis and have the support of real patients going through the same thing. I didn't really want it to get too big. It's great to get to know everyone, plan meet ups, and show our loving support. We don't talk about politics or religion, although you can say that you are praying for someone.
So, basically that's it. I've gotten a lot of backlash and animosity I feel from other patients/organizations. But, you only live once. And if I want to comfort these people and them comfort me, I don't see a problem with it. And if you do, I'm sorry. This gives me hope. The OG's that actually participate really makes me excited. So thank you Linnea, Cliff, Don, Tracey, and all the other long termers on there. I just LOVE it. And guys, if I'm doing something wrong or you just want to vent, you can always DM me. Thank you Catherine, Ashley, Diane, and Jennifer for helping make this dream a reality. I love you ladies!
Please pray for my friend J.C. as he just learned he has stage 4 melanoma. And thank you all for your continuous prayers and support. And if you want to join a group where you can air that dirty laundry and still have complete privacy....join us! God bless you all! And Karley is still playing volleyball! Thank you to all that prayed so much for her!